tag:blogger.com,1999:blog-7963954635935513841.post6178527208152088260..comments2023-03-24T05:50:57.382-07:00Comments on Jump on the Rollercoaster: Me and Biomed: it's complexValerie Foleyhttp://www.blogger.com/profile/17144896658431548065noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-7963954635935513841.post-89946842588264201542010-04-27T21:19:07.563-07:002010-04-27T21:19:07.563-07:00Totally feel where your coming from, though I am c...Totally feel where your coming from, though I am coming at it after 2.5 years of trying the stuff with seemingly little to no results. I've been supplementing all the things that I was told to supplement and yet last November with the last slew of blood tests we found out he was out of range (low) in some of the very freaking supplements we were giving...go figure!<br />I still give most of the supplements because it does resonate with me that he probably does need them. But there are plenty of days when I wonder why the hell I'm doing it. So, really, don't be hard on yourself about this. You've done amazing stuff for Billy in other ways!!<br />I will add one tiny thing, though...the ONLY supplement we have really seen results with are the b-12 shots. It is a definite learning curve to give them, and we've stopped a couple of times for months when we get fed up with doing it, but each time we start again we notice better awareness, eye contact, and attempts to talk. It's really interesting to see!Mama Debhttps://www.blogger.com/profile/08381495916734086130noreply@blogger.comtag:blogger.com,1999:blog-7963954635935513841.post-33538821314278785552010-04-18T21:24:11.960-07:002010-04-18T21:24:11.960-07:00And on the other hand... it's not wrong to wan...And on the other hand... it's not wrong to want the school holidays to be fun for the whole family, and not risk them turning into a medical experiment.<br />It's not wrong to be cautious before of jumping on multiple biomed bandwagons and never knowing which or whether they are helping or all waste of time and money.<br />It's not wrong to avoid making a child's life a constant round of testing and trialling.<br /><br />Back to the first hand, and R has been taking an SSRI for a few months now, and is awesomely thrilled with it. His psych recently commented that 'with the wonders of retrovision, he probably should have been on it since he was about seven'. I agree in some respects, but I feel completely differently about allowing a 17 year old to make his own decision on the benefits/side effects of medication, as opposed to me being the one telling the small child that he must take his medication. Especially a small child that does not have a fabulous capacity for communication.<br /><br />Oh, and I'm still procrastinating on diet - but in a family of five, it'd turn the world upside down.Lisanoreply@blogger.comtag:blogger.com,1999:blog-7963954635935513841.post-66005196828646552702010-04-18T20:56:25.983-07:002010-04-18T20:56:25.983-07:00Ditto what Heather said and stop beating yourself ...Ditto what Heather said and stop beating yourself up...there's plenty of ignorant slobs out there who'll do it for you, stop stealing their pithy thunder ;)<br />Baby baby steps, itty bitty piecemeal, trust your gut instincts, you know your child the best and you sound like you've done your homework and discussed everything pretty thoroughly with your doctor.<br />Pick one to start, write up a small, easy to follow time table and trust yourself ;)Rohttps://www.blogger.com/profile/14864094753113341376noreply@blogger.comtag:blogger.com,1999:blog-7963954635935513841.post-41867546061178322132010-04-17T23:46:38.527-07:002010-04-17T23:46:38.527-07:00Hey Val,
Baby steps! Just take baby steps! If yo...Hey Val, <br />Baby steps! Just take baby steps! If your boy cannot tolerate something then you take a couple days off and restart at a much lower dose. And I mean an extremely LOW dose. You know your Billy better than anyone on this planet and kudos to you in whatever path you decide to take as far as the supplements go. Remember this is a marathon, not a sprint. We did and do things VERY slow with our son Sean. He is very sensitive too. But baby steps have worked for us. Good luck with whatever you do.Hhttps://www.blogger.com/profile/03238565428454118591noreply@blogger.comtag:blogger.com,1999:blog-7963954635935513841.post-44476301493851143432010-04-17T08:53:42.728-07:002010-04-17T08:53:42.728-07:00I tried to post something more but it wouldn't...I tried to post something more but it wouldn't post. <br /><br />Just wondering, do you avoid TYLENOL? (Acetaminophen) I found out 5 years later after the twins were born is that Tylenol depletes much needed Glutathione. Glutathione helps to rid our bodies of TOXINS. Most kids with Autism already have a compromised immune system AND low levels of Glutathione.<br />I now avoid giving Tylenol (no matter what our dufus Dr advises) and use Ibuprophen instead. I now also give Cameron 1 gram of chewable Trader Joes brand of Melatonin. Melatonin not only gives him much needed rest, but it also helps to naturally raise Glutathione! <br /><br />Dufus Ped also wanted Cameron on Ritalin at age 4 years old! (he's now 6). We said a firm NO! I found something natural and safe and without the side effects that Ritalin would cause. It's called Suntheanine. Ever since these safe baby steps were put in place, Cameron has slowly / gradually come around. Happier, more alert, talks more, less meltdowns.. but we still have a long ways to go.<br /><br />Bite the Bullet? You are brave! Please keep us posted on the progress!CindyPDXhttps://www.blogger.com/profile/03956635871442333982noreply@blogger.com